Saturday, October 1, 2011
We attended Bennett's first Myelomenigocele (his form of spina bifida) clinic at Riley on September 27th. It was a long day, but we were happy with how the appointments and testing went. We arrived at 11:00am for a renal ultrasound and pelvic x-ray. Clinic started at 1:00pm, but we were not called in until about 1:45pm. Bennett weighed in at 16 pounds and measured 25.5 inches, our big boy! (He will be 4 months old on October 7th.) We were seen by someone from the neuro team, not our actual neurosurgeon. She checked Bennett's head and thought his soft spot felt okay, and his shunt seems to be functioning well! We will see our neurosurgeon for a checkup again next month. Next, we met the Developmental Pediatrician, Dr. Brei, who happens to have spina bifida himself. He thought Bennett's leg movement was amazing! He even said that we did not need to meet with Orthopedics because there was nothing he would need at this point for his legs! We will meet them at his six month appointment, and hopefully we won't really need them then either. Dr. Brei spent a lot of time with us answering all of our questions and making sure we felt comfortable. It was great to meet him, and very informative! We left with a prescription for a new diaper rash antibiotic cream. Hopefully we will finally be able to get this under control! He's been battling a diaper rash since birth. After our meeting, we were sent to the Urologist for Bennett's bladder/kidney test called VCUG. Bennett started getting worn out at this point and cried for a few minutes. This was his only breakdown of the day. He was such a trooper! The testing went well, and the urologist said that there is still no reflux into the kidneys and we do not need to do anything at this point! We will repeat the VCUG in a couple months, but this is great news for now! We are so thankful that our little Bennett is getting good news and we pray it continues!