We had a big month: Halloween, Bennett's Baptism, and lots of fall fun! We also had an appointment with the neurosurgeon.
Halloween was fun with our little bear and baby bear! Bennett wore Matthew's first Halloween costume, a polar bear outfit. Matthew wanted to be a bear like his brother, so we ended up with two bears! Bennett enjoyed watching all the kids. He was so alert and happy the whole evening! Matthew loved going house-to-house and handing out candy at home. He did have trouble understanding that some houses give things other than candy. He received a pencil at one house and did not know what to do, so he threw it on the ground and started running to the next house looking for candy. It's hard to be a two-year-old! We all had a fun time!
Bennett was Baptized Sunday, November 6th. It went really well, 
especially compared to our experience with Matthew's screamfest Baptism. Bennett slept right through the whole ceremony! We had a good time celebrating at our house afterward and seeing the whole family.
especially compared to our experience with Matthew's screamfest Baptism. Bennett slept right through the whole ceremony! We had a good time celebrating at our house afterward and seeing the whole family.We had a check-up with the neurosurgeon November 9th. She said that Bennett has healed up nicely, and looks good! She didn't even recognize him because he has grown so much in the past couple of months! She thought his movement looked good, the only trouble being his ankles pulling upward more than down. She still thinks he will be fine walking. His head has grown a little bit above his curve, so she ordered a CT scan to check the fluid and shunt. It came back fine, just a little extra fluid around the outside of his brain. She just wants to keep an eye on it and see him again in February. Overall, he's doing great!
1 comment:
Hello!
I stumbled upon your blog, and reading few of the entries has given me a very meaningful inside perspective about having a child affected by spina bifida. I am inspired by your courage and touched by the pictures of your family that I had to reach out. My name is Courtney Beyer, and I am the new Study Coordinator at VitaPath Genetics. Earlier this year, we successfully completed the first phase of our landmark study looking at the genetic factors contributing to spina bifida. In conjunction with our academic collaborators at Children’s Hospital Oakland Research Institute (CHORI), Stanford, UC Berkeley and UCSF, we recruited over 1,000 women and their child affected by spina bifida to participate.
Our first phase produced promising results but, we believe that it is appropriate for us to replicate this study in a second, independent group of mothers. We are beginning our second study in early January and are reaching out to more mothers to participate. In order to reach as many women as possible, I would very much appreciate if you could include news about the study in your blog. I also have banners and buttons if you would like to post something on your site. In addition it would be great to connect with you via facebook (search SB Genetics) and twitter @sbgenetics.
I would like to get in contact with you to share more information and answer any questions that you may have. Please email me at CBeyer@vpgenetics.com and visit www.sbgenetics.org. This website gives an in depth explanation of the study as well as a link if you are interested in enrolling. Thank you for taking the time to read my note and I am greatly looking forward to being in contact.
Warmest regards and happy new year,
Courtney
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